EAPC task force on patient-reported outcome measurement in palliative care (2015)


The task force started its work at the 12th EAPC Congress in Lisbon 18 to 21 May 2011 
Patient reported outcome measurement plays an increasingly important role in palliative care and is used in clinical care (e.g. assessing symptoms and needs of patients), audit (quality assurance of services) and research (e.g. study the effectiveness of an intervention). Hundreds of generic outcome measures and specific symptom measures exist for patients in the palliative care situation. Although initiatives were started over the last decade to improve outcome measurement in palliative care, a clear roadmap or uniform approach to measuring outcomes is lacking. As palliative care services increasingly need to justify their existence and show their quality, documentation of outcomes is paramount. 

Various international and national groups, such as the PRISMA group, the EPCRC, PCOC in Australia or the German outcome project are dealing with outcome measurement in palliative care. An EAPC task force could help to bring these groups together and move efforts forward to improve outcome measurement in palliative care on a European and wider international level. As there are various links to the African Palliative Care Association APCA (within PRISMA, EAPC) we would like to invite two colleagues from Africa to participate in the task force. Also, contacts already exist to colleagues in the US and Australia who are involved in moving the topic forward in their countries. 

  Aims & objectives

  • To harmonise approaches to outcome measurement in palliative care 
  • To agree on a common language for outcome measurement in palliative care  
  • To develop reccomendations for a toolkit of outcome measures in palliative care  
  • To provide resources for the use of patient-reported outcome measures in palliative care 
  • To link outcome measurement and quality indicators for palliative care   

Partners and Contributors 

Cicely Saunders Institute, Department of Palliative Care, Policy and Rehabilitation 



Claudia Bausewein 
Prof. Dr. med. PhD MSc 

Department of Palliative Medicine 
Klinikum der Universität München Campus Großhadern Marchioninistr. 15, 
81377 München 

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Irene Higginson 
Cicely Saunders Institute 
Department of Palliative Care Policy and Rehabilitation King’s College London, UK 

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David Currow – Australia 
Lukas Radbruch – Germany 
Steffen Simon - Italy 
Massimo Costatini - Norway 
Stein Kaasa -Netherlands 
Luc Deliens - Portugal 
Pedro Lopez Ferreira - South Africa 
Kath Defilippi - Sweden 
Gunnar Steineck - Uganda 
Julia Downing - UK 
Richard Harding - USA 
Amy Abernethy