The Children and Young People’s (CYP) Reference Group aims to advocate for and drive the development of accessible and high-quality palliative care for children and young people through the EAPC.
The CYP Reference group brings together all those working to develop and sustain children’s palliative care services in order to expand the evidence base and share learning and research.
A Steering Group has been established to organise this work and to build the membership of the wider group.
Aims and objectives
To bring together the wide range of professionals working to develop children’s palliative care in European countries and provide opportunities for sharing of information, research, education and advocacy.
To support the development and dissemination of the evidence base in children’s palliative care through identification of specific workstreams leading to published guidelines and standards.
To provide educational opportunities for those working in children’s palliative care through the development of paediatric sessions at EAPC events.
To support the development of palliative care for children and young people across Europe, through advocacy and awareness-raising, signposting organisations to the support offered by the International Children’s Palliative Care Network, the guidelines and standards developed by the Paediatric Task Force and other useful resources.
Resources
The European Charter on palliative Care for Children & Young People
Developed by our Reference Group, the Charter aims to set out standards that can be used as a tool for empowering children, families and healthcare professionals, with regards to what they can expect, what should be available and accessible to them, and for advocating for the development of children’s palliative care services within Europe.
Download the charter below, more translations are to follow.
Webinars
Committe
Ana Lacerda
Joanne Brennan
Silvia Lefebvre D'Ovidio
Julia Downing
ICPCN
Helena Dunbar
Lorna Fraser
Deborah Gubler
Jitka Kosikova
