Primary Care
Palliative care still only reaches a minority of potential beneficiaries and is often introduced too late to prevent much distress. People with multi-morbidities and non-malignant conditions, frailty and dementia are still less likely to receive any form of palliative care than those with cancer. To gain universal coverage, a coordinated primary care and public health approach is necessary. Our vision is that palliative care is fully integrated in primary care systems internationally so that all patients have early access to a palliative care approach in the community (in their own home and in residential care facilities). We also believe that local communities should be involved in providing care and support.
Aims & Objectives
- Promote integration of primary care as an essential element of national palliative care frameworks, and palliative care as an essential element of national primary care frameworks.
- Foster training and educational development in timely palliative care for all primary care health professionals, at both undergraduate and graduate levels.
- Advocate that primary care practitioners providing palliative care have adequate resources and professional support to encourage safe and effective practice, and to promote health equity for people with life-threatening illnesses.
- Provide collegiate support to primary care practitioners as they develop evidence- based approaches to high quality primary palliative care.
- Support and develop research opportunities in primary palliative care – across EU countries.
- Identify mechanisms to support primary palliative care in all countries, with a specific focus on lower and middle income countries.
The Reference Group is chaired by Tania Pastrana, Assistant Professor for Global Palliative Care, Aachen, Germany and Sebastian Moine, UK
Group resources
Videos and blogs
Executive Committe
Matthew Grant - Co-chair
is a Palliative Medicine Physician, General Practitioner and Senior Research Fellow. He originally trained in Australia, and moved to the Netherlands where continues to combine clinical work in General Practice / palliative care with research work as an assistant professor at UMC Utrecht. He is an Honorary Senior Research Fellow at University of Melbourne and St Vincent’s Hospital. His research focusing on better integration of primary and informal care for patients with chronic incurable illnesses, including the social and ethical implications of illness.
Alberto Meléndez Gracia
studied Medicine at the University of Navarra, Pamplona (Spain). After graduating, he worked at the Hospital San Juan de Dios (1995-1997), where he was introduced to Palliative Care. Between 1997 and 2000 he trained as a Family Doctor. In 2000, he started the Master in Palliative Medicine at the University of Valladolid and at the same time was working as a Family Doctor in Vitoria (Álava, Spain). In 2003, he started the Primary Care Support Team in Navarra. In 2007, he started a similar work in the region where he live that has led to his current work in the team of Palliative Medicine of the OSI Araba (Osakidetza-Basque Country, Spain). Between 2016 and 2021, he was vice-president of Secpal (Spanish palliative care society). And from 2013 to 2023, he was president of Arinduz – Basque Palliative Care Society.
Irena Laska
is Executive Director of “Mary Potter” Palliative Care Center since 2004. Leading an interdisciplinary team of medical doctors, nurses, social worker, financial officer etc.
- Mrs. Laska is the country leader for palliative care.
- National trainer and advocator.
- Lecture of PC in the bachelor’s and master’s degree.
- Leader of the group of lectures who teach palliative care in all Nursing faculties in the country. Responsible for palliative care curriculum and its continuous update.
- Member of National Working group for Palliative Care; in preparing the law of palliative care and developing it further.
Really involved in bringing change in the health institutions and integrate palliative care within public health care. She is leader of a training group for the development and reorganization of Primary Health Care in Albania, focusing on home-based care since 2020
Carlos Seiça Cardoso
is a Portuguese family physician, lecturer at the Faculty of Medicine of the University of Coimbra, and researcher at the Palliative, End of Life and Bereavement Care research group at the same institution, with research in primary palliative care.
PhD in health sciences, focusing on the development and evaluation of a new consultation model for people with palliative needs delivered by family physicians. Already with previous collaboration with the reference group, collaborating and assisting others in the translation of tools such as the Toolkit for the development of palliative primary care and SPICT-4All.
Dave Fearon
is a family doctor on the Isle of Lewis in North-West Scotland, and a teaching fellow in Family Medicine at the University of Edinburgh. He worked for several years in Mauritania, West Africa, where he started a primary palliative care service and completed a PhD exploring the experiences of women with advanced breast cancer. Since then, he has continued to build on his experiences of cross cultural, primary palliative care provision and research across Africa and Asia. He continues to try and better understand global palliative care, planetary health, sustainability, compassion and spirituality.
Maria Bouri
is a primary care doctor in Athens, Greece, specialised in paediatrics. She holds a PhD in palliative care education (National & Kapodistrian University of Athens), a Diploma in Palliative Medicine (University of Wales, UK) and an MA in Medical Humanities (University of Wales, Swansea, UK). Since 2001, she works in primary care for families, including those facing incurable conditions. She is also affiliated at the University of West Attica, Department of Community and Public Health, providing part-time teaching and involved in research on primary palliative care and community health. Her clinical and research interests include: training health professionals to support palliative care in the community, health-promoting/ public health palliative care and incorporating humanities in the education of health professionals.
Dan Munday
Kristen Wentlandt
Kirsten Wentlandt is a palliative care physician from Toronto, is the W. Gifford-Jones Professor in Pain Control and Palliative Care, and Head of the Division of Palliative Care at the University of Toronto. Before completing her family medicine and palliative care training, she also completed a PhD, and in her residency did a Masters in Health Sciences (Health Administration). Her clinical work and research are focused on palliative care integration in primary care and in non-malignant populations (advanced lung, heart, pulmonary hypertension and transplant populations). She has also been known to sit on various international, national and regional committees that focus on developing strategies to improve access to quality palliative care.
