The Reference Group in Neurology aims to support and help the development of palliative care for people with neurological disease. This includes collaboration with other organisations involved in neurological care, including the European Academy of Neurology.
The Group has helped to develop webinars on various aspects of palliative care and neurology, facilitated sessions at both the EAPC and EAN congresses, encouraged collaboration with neurological groups and services and lead on research studies across Europe.
The Group has collaborated with the EAN in aiming to develop a curriculum for neurologists and palliative care and for palliative care specialists in Neurology.
Group resources
EAPC papers
- The involvement of palliative care with neurology – a comparison of UK, Switzerland and Italy.
- Current collaboration between palliative care and neurology: a survey of clinicians in Europe.
- A consensus review on the development of palliative care for patients with chronic and progressive neurological disease.
Committe
Dr. med. Alexander Kowski
Germany
Consultant and Researcher
Station und Hochschulambulanz für NeuroPalliativeCare, Charité – Universitätsmedizin Berlin, Germany
Dr. Caroline Barry
United Kingdom
Consultant and Associate Professor in palliative medicine, University of East Anglia, UK.
Prof. Raymond Voltz
Germany
Professor for palliative medicine, Head of Department of Palliative Medicine, University of Cologne, Germany.
Dorine Boersema-Wijma
Netherlands
Consultant and Researcher, Department of Public Health and Primary Care, Leiden University Medical Center, and Huntington Center of Expertise Topaz Overduin, Netherlands.
PD Dr. med. Caroline Hertler
Swiss
Physician and Researcher, Klinik für Radio-Onkologie, Kompetenzzentrum für Palliative Care, Universitässpital Zürich, Swiss.
Dr Peter Allcroft
Australia
Commission on Excellence and Innovation in Health, Australia.
Consultant and Researcher, Southern Adelaide Local Health Network, and Clinical Lead SA Statewide Palliative Care Network.
Prof. Dr. Marcel A. Kamp
Germany
Professor for Palliative Care, Brandenburg Medical School Theodor Fontane and Faculty of Health Sciences Brandenburg,
Immanuel Clinic Rüdersdorf, Germany.
Letizia Panicari
Swiss
Specialist in Neurologx, ongoing training in Palliative Care.
Clinica di Cure Palliative e di Supporto,
Ente Ospedaliero Cantonale,
Bellinzona e Lugano, Switzerland
Dr. med. Veronika Dunkl
Germany
Physician and Researcher, Department of Palliative Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Germany.
Professor David Oliver
United Kingdom
Retired Consultant Physician in Palliative Medicine and Honorary Professor at the Tizard Centre at the University of Kent, UK.
Dr. Radka Bužgová
Czech republic
Researcher, Department of Nursing and Midwifery, University of Ostrava, and Mobile hospice Ondrášek, Ostrava, Czech republic.
Heidrun Golla
Germany
Professor for palliative medicine, Department of Palliative Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Germany.
Elisabetta Bertocchi
Italy
Palliative Care Nurse, Palliative Care Unit, Azienda USL-IRCCS of Reggio Emilia, Italy.
